Best Breast Cancer Blogs & Sites
In this post, we’ve put together a comprehensive list of breast cancer websites and blogs available online, to help you find answers to your questions from qualified sources, specialists, experienced professionals and in some cases, patients like you.
We hope this list can assist you in finding quality information from reliable sources.
Your situation is unique!
Finding people that have experience dealing with with what you are dealing with now has proved to be very helpful for patients and survivors.
They can shed some light into coping with similar issues. Combining the Know How and Knowledge from qualified health practitioners and patients/survivors who went though similar processes, can be extremely helpful to your own journey.
You may be wondering why we spend so much time putting this together? You may Asking yourself what is our goal?
Well, the answer is twofold:
Genuinely we want to help you find information you are looking for. We hope to Set you in the right direction and easy your way into learning about breast cancer.
Before listing sites and blogs here, we visited every site added to this post.
Not only going to the home page. No! We navigated articles and look into what type of information you would find inside these sites. That included checking the site type, what kind of help they provide to new patients and what stood out on each site.
We took the information and made a short summary about their content, overall concept and services they offer.
What was very nice to find out is that most of these sites offer free support and guidance.
Most sites provide ways to interact and to be contacted. You can reach them either online, by phone or schedule a visit. Some organizations offer their services on agencies they set up in across the country they operate in.
In these cases, you can visit selected locations where they provide services and support.
So, now you can go to the guide’s menu and explore your options.
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How We Selected Sites for This Guide
The criteria we used for the list was very straight forward.
We selected sites according to their authority, the type of organization or person behind and off course, by information accuracy.
Most government, Universities and non – profit organization sites, have very high standards and compliance factors they must respect. This is very important when it comes to health related topics and was a very critical fact on selecting them to be included on this list.
Next we looked into user experience. Visitors coming to these websites play a critical role on the site performance and when the user experience is great, people tend to come back. It usually leads to other sites in the industry commenting, linking, sharing content and of course, helping patients.
The following factors were type of information these sites were providing, where they were sourcing information from within the medical world, the feedback they received from visitors and other leading sites, comments on articles and other citations online either from patients and survivors or other publications.
Finally, the last factor was currency of information. Most leading organizations are keen to stay up to date on any developments and keep information current and fresh.
The best sites have a combination of Health Professionals and Journalists doing research and making sure they share high quality information. They make sure to address the validity of new findings and provide reasons why the new options may provide real benefits or not, and whom.
So here you have it. This was the outline we followed in our selection process.
Where Should You Start?
We don’t know for sure, where you are in your cancer journey, therefore is impossible to provide a perfect answer.
What we did is to organize information assuming that people looking for guidance are in the initial stages of their journey.
With that in mind and dwelling in our own experience as relatives to patients, we think that the first thing every patient or family member should do is to learn the basics and most essential facts about breast cancer.
Your Health Specialist will give you a great head start. However, formal patients and survivors stress the importance of doing your own homework.
To avoid conflict and confusion, it is important to keep things simple and rely on reliable sources of information. The best source is always your Health specialist, simply because he knows your case and is qualified to help you.
Next, In our opinion, you should always focus on finding high quality and well researched information. The best way to find this type of information by visiting government sponsored websites and blogs, non-profit organizations and medical society websites.
They offer evidence based information on every breast cancer related topic and constantly update information. Their information is current and reliable.
Going to these websites, you will be able to find all topics that may be relevant to your own unique situation and cut down the time spent on researching topics that may not be relevant to your own case.
Try to focus and start “small”! Don’t try to learn everything at once!
It is normal to wish to know everything about your condition, but remember always that It can be overwhelming and it is easy to get lost in an ocean of information available online.
Relevant To Your Needs
HELPING YOU FIND ANSWER TO YOUR BREAST CANCER PROBLEMS
The Content Structure
We started by listing these sites mainly by type.
We simply separated them is six categories: organization, finance, Support & Advise, education, news and personal blogs. This will allow you select the type of information you are looking for now.
You may be interested in more than one, so please navigate the sections to find out more about the topic of interest and best match your needs.
Organizations – Government Sponsored, Non- Profit & Charities
These types of websites have large databases offering high quality information on most topics related to breast cancer.
They aggregate information from different government organizations, health agencies, universities, hospitals and research organizations with the goal to educate and inform the general public.
They cover the most important topics related to Breast Cancer, such as: symptoms and diagnosis, treatments and side effects, research and dealing with cancer on a day to day basis.
One of the most difficult aspects of breast cancer is the financial stress that it creates for patients and their families.
This is really a very serious problem and one that most patients struggle with in their fight against breast cancer.
You will find here a list of organizations that provide financial relief to cancer and breast cancer patients.
If You are looking for information on How to Get Financial Assistance For Your Breast Cancer Treatment, we created a guide that can help you find information you are looking for. It has answers to questions that may help you to deal with cancer related financial challenges. You can find the guide here.
Next, we selected, visited and made a list of educational sites that produce very high quality educational material and video courses for patients. They dedicate all their efforts in providing us all with information and knowledge about the disease.
We also checked sites that still have active forum or message boards with ongoing discussions. What We found out is that as with other forums, Facebook gourps have replaced them. However, some websites kept their forum active and the best one belong to large organization & Foundation websites.
We we highlighted the sites in our list that have active forum and discussion boards active. These can be very helpful, specially if you have been recently diagnosed.
News sites in general provide curated content that is relevant and new. They write about researches, clinical trials, new technology, tests and patient relevant topics.
We listed the sites that we believe to be the best in terms of material and information. Most of them have Health Professionals work together with content writers to combine quality with user friendly style.
Finally, we will list Blogs run by cancer survivors or relatives, that are usually very inspirational and we think can be valuable when things are not going well.
We will provide links to these websites home pages and most visited sections.
Top 93 Breast Cancer Websites & Blogs
One of the most visited websites worldwide is www.breastcancer.org
They are a non-profit organisation for breast cancer education and support which keeps information up to date on all topics; from complex medical topics to personal information.
This is a very comprehensive website covering a wide range of breast cancer subject matters including symptoms and diagnosis, treatment, research news, trials, recovery and renewal. They publish in depth, well written and easy to understand articles on different aspects of breast cancer. They make complex topics easy to understand.
The link to their home page is www.breastcancer.org.
They also an active community area (forum) organized by topics and with discussion boards covering many aspects of breast cancer and related issues and a podcast.
When I checked their page to write this article on the 16th of October 2018, they displayed the following information: “We have currently 212,716 members in 82 forums discussing 151,799 topics.
American Cancer Society
The American Cancer society website which is a is a nationwide organization dedicated to cancer research, education, advocacy, and support. As they say, “they are on a mission to free the world from cancer”.
This voluntary organisation, runs one of the most comprehensive websites on cancer and cancer-related matters on the internet. Their information comes from various authoritative sources each specific type of cancer.
It covers all forms of cancer, there’s a wealth of information on cancer and cancer-related matters, and some forums or discussion boards and two chat rooms.
To find their information on breast cancer, at the top of their home page, click on the menu link “Learn About Cancer”, which will redirect you to an alphabetical list under the heading “Select a Cancer Type”; search for “Breast Cancer” and you will reach the Breast Cancer Information section on their site.
They run a breast cancer forum as well. You should look for a link to “Discussion Boards” on their Cancer Survivors Network index page. Here is the link: http://csn.cancer.org.
They offer support programs that range from stop/quitting smoking programs to volunteer-based support in your community. They also give you the chance to get involved in research on treatment and survivorship.
Their breast cancer information you can find here: www.cancer.org/cancer/breast-cancer.html
Breast Cancer Care
BREAST CANCER CARE
Another excellent and comprehensive site we recommend is Breast Cancer Care.
The “Breast Cancer Care is the UK’s leading provider of information, practical assistance and emotional support for anyone affected by breast cancer. They help people as they every receive almost two million requests for support and information through our services including our helpline, website and publications.
They have an interesting concept; They combine the knowledge, information and unique experience of people affected by cancer who are network members with their clinical expertise. A fine blend between hands on emotional real life experience with science and medical know how to provide practical support.
All their services are free”. Their address is www.breastcancercare.org.uk.
They are currently running about eighteen forums on various aspects of breast cancer and there is a sort of chat room too. The direct link to their forums is www.breastcancercare.org.uk/forum.
To learn more about them you can visit their Youtube channel. Here is the link of their explaining video: welcome video
There are over 12,000 members in their community.
The Breast Cancer Research Foundation
The Breast Cancer Research Foundation is dedicated to prevention and finding a cure for breast cancer. Their goal is to find ways to accelerate the cure process by financing breakthroughs and increase the progress towards survivorship.
They have raised over half billion dollars for lifesaving research and used it to support clinical research worldwide, contributing to many diagnostic and treatment breakthroughs.
They award grants to scientists from top universities and medical institutions globally.
You can find survivor stories, science and news about breast cancer. Here is the link for the stories section: www.bcrf.org/blog-categories/stories-that-inspire
CancerCare is a national nonprofit organization whose mission is to provide free professional help to people with all cancers and their loved ones through counseling, education, support groups, and direct financial assistance.
They organize their resources targeting 3 separate categories: For patients and survivors, for caregivers and loved ones and finally, for health care professionals.
They are absolutely right when they state that cancer diagnosis turns a person’s world upside down emotionally, physically and financially as well. They obviously know the harsh aspects of cancer and provide a help platform
The menu offers 5 main navigation topics.
To find information about Breast Cancer, select the “The Help by Diagnosis or Topic” on the menu. They have a a list that allow patients from various types of cancer to find information and get support.
The Stories of Help and Hope link brings you to a section in which patients share their experiences on different types of cancer.
Finally, they provide links to professionals in different areas related to cancer that may be important for patients as well as a Ask CancerCare link that allow people to submit questions to experts.
This month is Breast Cancer month. Here is the link: www.cancercare.org/questions
Center For Disease and Control
The Center for Disease Control is part of the American Department Of health and Human Services.
Their website provides information on several diseases and conditions. Among them, Breast Cancer
Their breast cancer page is found at https://www.cdc.gov/cancer/breast/
They offer basic information about cancer, statistics. low-cost screening detection program and other resources. The Find a screening provider option is very useful, as they have a list of free and low costs providers that you can visit to select a provider near you: Early Detection Program
The statistics page is very informative and allow visitors to get an idea of the facts and figures about breast cancer in the united states.
Here is the link for their basic information page: CDC Basic Info
We also have a page with some facts and figures here
Cancer Hope Network
Cancer Hope Network focus on support.
They have over 400 volunteers with at least one year post-treatment or successfully undergoing therapies.
Here you have the opportunity to connect to those currently undergoing cancer treatment with trained volunteers who have experienced a similar diagnosis and treatment. A simple but very strong approach. Connect you to someone you can relate to in terms of experience. They take into consideration not only the type of treatment or diagnosis, but also lifestyle and other variables that matter.
Their free, one-on-one support is also available to family members.
Here is a link to their “what we do” page: www.cancerhopenetwork.org/what-we-do/
National Cancer Institute
National Cancer Institute
A very good source of information on breast cancer and its treatment is the website of the U.S. Government’s National Cancer Institute at www.cancer.gov.
If you want to learn more about the breast and breast cancer, I recommend you to take time and visit this website.
The section devoted to breast cancer has all the information you need on a compact format. It gives an easy to read and easy to understand description of the breast, what breast cancer is, how it is diagnosed, treatment options, descriptions of treatments, and more.
To visit their breast cancer page follow this link : www.cancer.gov/cancertopics/types/breast.
Alternatively, go to their home page, find the heading “Types of Cancer” and click on the link “Breast Cancer”.
Dr. Susan Love Research Foundation (DSLRF)
The DSLRF is on the breast cancer research forefront.
Their goal is a future without breast cancer.
The organization doesn’t believe in any type of divide between patients, the public, and the medical community that treats breast cancer. Instead, they believe we’re all one and should all be united in the fight against breast cancer.
Their blog provide the latest information about studies and research and developments from the scientific and medic world. It keeps you up to date with ongoing breast cancer studies that patients can join.
They are running 3 programs for breast cancer: Army of Women, IM Patient Science and The health Women Study.
If you want to explore the disease and delve deep into any aspect of breast cancer, a very choice and source of information is Medlineplus at www.medlineplus.gov.
This website is a service of the U.S. National Library of Medicine and the National Institute of Health, the world’s largest medical library.
Whatever you wish to learn you can find here; the website is very big and extremely well organized with an added bonus: Is very easy to search and navigate.
The link to the section on cancers is www.nlm.nih.gov/medlineplus/cancers.html and the link to their section on breast cancer is www.nlm.nih.gov/medlineplus/breastcancer.html. You can really go into the granular level in this website when it comes to breast related topics.
There are sections on Breast Diseases, Breast Reconstruction, Male Breast Cancer, Mammography, Mastectomy, and Women’s Health.
The National Comprehensive Cancer Network (NCCN)
The National Comprehensive Cancer Network (NCCN)
The NCCN is an alliance of leading cancer centers that focus on patient care, research and education.
In their about page they define themselves as”
“… a not-for-profit alliance of 21 of the world’s leading cancer centers. We are dedicated to improving the quality and effectiveness of care provided to people with cancer” …
“an authoritative source of information to help patients and health professionals make informed decisions about cancer care.
Through the collective expertise of its member institutions, the NCCN develops, updates, and disseminates a complete library of clinical practice guidelines. These guidelines are the standard for clinical policy in oncology” (quoted from their website).
If you are considering taking an active role in planning your course of treatment in consultation with your medical health providers their guidelines can be very valuable.
To find and access their clinical guidelines for physicians, for the treatment and care of patients with breast cancer, you should visit the following link: www.nccn.org/professionals/physician_gls/default.asp.
They have also prepared patient friendly versions – easy to understand – of their guidelines
You can find and download them here Guidelines.
Fox Chase Center
Fox Chase Cancer Center is a hospital that belongs to the Temple University Health System. They often rank on the list of top cancer centers in the U.S.A. and they offer services to International patients.
Among their, what stands out is their Patient guide. It is designed to help parents talk with young children about cancer, including a video, Talking About Your Cancer: A Parent’s Guide to Helping Children Cope; free books through the Louise S. Mauren Book Fund; and more.
To visit their website follow this link: www.foxchase.org/patients
This New York City based organization offers a variety of free support services to women who are survivors or victims of breast cancer or ovarian cancer.
They say: “SHARE supports, educates, and empowers people affected by breast or ovarian cancer. All of our services are provided by survivors “who’ve been there.”
Their services are all free of charge and include Support groups, Expert-Led educational programs, National Breast Cancer Helpline, online communities and much more.
They care about patients and understand the challenge. Their Motto is:
“We help people face their feelings and fears, communicate effectively with their doctors, and make informed decisions about their health.
SHARE publications have several downloadable books on breast cancer. You can download them by visiting this link: www.sharecancersupport.org/online-content-library/share-publications/
Imaginis is a medically reviewed women’s health information resource focusing on women’s cancers, heart disease, stroke, multiple sclerosis, and more.
The first topic on their list is Breast Cancer.
Once you select it, you will be redirected to their Breast Cancer – Symptoms & Treatment Resources page.
Living Beyond Breast Cancer
Living Beyond Breast Cancer (LBBC) is a nonprofit educational organization committed to improving the quality of life of women affected by breast cancer.
In addition to their website, LBBC offers the Survivors’ Helpline.You can get support in person, online and by phone.The educational videos are high quality and provide actionable information by topic.
They also organize educational conferences, publish a quarterly newsletter, Novelas and other consumer focused booklets, outreach to medically underserved women, and much more.
They have a spanish section on their website: LBBC SPANISH
The link to their video library: www.lbbc.org/letstalk
National Breast Cancer Coalition
Since 1991, has been fighting hard to fulfill their mission: “ End Breast Cancer By 2020.” Not An Easy Task…
Their Motto: “An Organization that Takes Action”
And, have to say that they do. They are the Breast Cancer Revolutionaries, Silicon Valley type of minds playing in the field of breast cancer.
They approach Breast cancer with a sense of urgency and determination that is quite unique. They challenge the status quo and go against popular thinking.
Their have 3 priorities: Research with the intent of finding ways to prevent breast cancer, Access meaning improve and facilitate access to quality care for women, and finally Influence, playing the role of Breast Cancer Activists / Renegades/ Advocates a.k.a. Influencers.
Here is the link to their very cool website: www.breastcancerdeadline2020.org/homepage.html
National Coalition For Cancer Survivorship
The National Coalition for Cancer Survivorship (NCCS) was founded by cancer survivors to advocate for quality care for everyone diagnosed with cancer.
Not as Radical as their previously mentioned counterparts, but very active nevertheless, the NCCS advocates for cancer patients on the national level and encourages cancer patients to be their own advocates, offering free educational resources.
They share similar values with the NBCC, but focus on Cancer in general and fight for quality care for all people touched by cancer. Their mission statement says it all: “ While we hope for the cure, we must focus on the care”. Quality care for all cancer
National Breast Cancer Foundation
National Breast Cancer Foundation, INC
The NBCF was founded in 1991 be Janelle Hail, a breast cancer survivor diagnosed with breast cancer in 1980 at the age of 34. As with many other Breast Cancer survivors today, she could find very little information about the disease.
The lack of information and options, forced her to make decisions without proper knowledge.
It may seem almost alien today, to hear someone talk about lack of information, but the world was a very different place in 1980.
And, the NBCF was born, to provide help and inspire hope to those affected by breast cancer. The They focus on Early Diagnosis education.
Here is the link to their site and educational material: https://www.nationalbreastcancer.org/
We added a video section to our own website and organized the videos to give you access to their amazing educational series. You can find it here: VIDEOS
National Lymphedema Network
The National Lymphedema Network provides information on the prevention and management of lymphedema and supports research into the causes and possible alternative treatments for this condition.They offer educational resources and can help those with lymphedema find quality care.
Jewish Breast Cancer Community
Sharsheret is an organization that offers support to young Jewish women ( and their families) who have been diagnosed with breast cancer or who have a higher genetic risk of developing breast cancer. It is important to mention that they don’t exclude people from other races, color or ethnicity.
Sharsheret helps women connect with peers who are in a similar situation and learn about genetic risk, and addresses the information needs of Jewish women with breast cancer in a culturally relevant and sensitive manner.
They have very in depth information in the What We Do section; interesting discussions about Genetics and side effects of treatments.
Here is the link to their home page: https://sharsheret.org/
StandUp To Cancer
Stand Up To Cancer is a research-funding organization, focused on innovation and collaboration between researchers. They receive a lot of coverage due to their collaboration with the entertainment community.
Here is what they do in their own words”
“Stand Up To Cancer enables scientific breakthroughs by funding collaborative, multidisciplinary, multi-institutional scientific research teams and investigators”
Very colorful and interactive website with loads of valuable information.
You can visit their page here: https://standuptocancer.org/what-we-do/awareness/
Susan G. Komen For The Cure
Susan G. Komen for the Cure is a very active breast cancer patient advocate and fundraising organisation, probably best known for its Komen Race for the Cure events. Their vision:
“ A World Without Breast Cancer ”
MISSION: Save lives by meeting the most critical needs in our communities and investing in breakthrough research to prevent and cure breast cancer.
GOAL: Reduce the current number of breast cancer deaths by 50% in the U.S. by 2026
Susan G. Komen stands out for the quality of their work, dedication and information.
You can find everything about breast cancer on this website. The amount and quality is second to none.
It may get overwhelming – in a very positive way – as you can dig deeper into topics. It is structure in layers, and it provides very detailed information on every single topic. Amazing.
The story behind the website is very touching. The founder, Nancy g. Brinker, promised her dying sister, Susan, that she would do everything in her power to end breast cancer forever. That was in 1982, the year she founded Susan G. Komen with US$ 200 and list of potential donors.
Today, this organization is the largest nonprofit source of funding in the fight for breast cancer. Bold claim, but there is no reason to doubt them.
They raise funds for research, education, and outreach through community events such as Race for the Cure. Komen has affiliates throughout the United States and internationally.
The website: https://www.komen.org/
Young Survival Coalition
Young Survival Coalition (YSC) focuses on the unique issues and challenges faced by women 40 and younger diagnosed or living with breast cancer. If you fall into this category this is a very valuable source of information.
The organization was created by 3 young patients – under age of 35 – that were discouraged by the lack of resources and information available for younger women.
They operate through peer-to-peer support system, organize conferences, advocacy, and education, YSC reaches at-risk women, young women with breast cancer, and the medical community.
The Johns Hopkins Breast Cancer Center
The John Hopkins Hospital Breast Center website focus on education and high quality research information.
What is valuable for you and patients, is the “Ask the Expert” section, where you can submit questions about breast cancer, and it currently has several thousand answered questions.
The website is very easy to navigate, share patient stories and provides very good guidance for patients. You can visit them at www.hopkinsmedicine.org/breastcenter
The direct link to it is Ask the Experts.
BreastFree is an information resource for women who are considering or who have decided to have no reconstruction after mastectomy.
They have different areas in their site addressing topics to mastectomy – before and after – such as preparing for surgery, physical therapy and the personal stories. Members of their community share their experiences in their “personal stories” section: http://breastfree.org/story.php
Navigating this section, you can read their stories and gain valuable insights that will help you understand what mastectomy is all about, their journey’s, challenges, decisions and experiences. This is a very unique and interesting angle on a very difficult, personal and emotional aspect of breast cancer.
Another section that is very interesting is the photographs section. In this are of their website members share their photos divided by topic and you are able to see photos of women who chose to not have reconstruction, and get advice and tips on living breast-free. You find it here: http://breastfree.org/photos.php
My Life Line
We are When facing Breast Cancer, there are days when you feel empty and wake up asking yourself: “ What Am I Going To Do Today?”
Well, lifeline.org provides you with an alternative to feel that void.
This platform allows you to connect, share and not feel lonely.
It is an user friendly, personalized online platform that allows patients to create a web support community.
Through MyLifeLine, patients can give updates to family and friends, share photos, provide educational links, assign a friend to delegate tasks without worrying about technical website issues.
Lifeline provides free with website management, and much more.
This is a must visit website for those concerned about hereditary breast and ovarian cancers.
Force stands for: Facing Our Risk of Cancer Empowered.
They have extensive information on hereditary breast and ovarian cancers, genetic testing and related topics. They organize information with links to the sources which is always very good, for those wishing to explore topics further.
As most of breast cancer sites, they have a community. You find the link “Get Support” on their homepage and you can visit the different sections.
If you follow the link you will find all their support services, including a very active message board (forums), link to their helpline and access to “outreach groups throughout the US that meet periodically to offer peer support and share resources”.
The address is www.facingourrisk.org.
This website was built to provide information and support relating to breast cancer patients with brain metastases.
“This website offers women with metastatic breast cancer and their families a place to learn about brain metastases from a patient perspective. We are a source for the latest information about this form of the disease, as well as for personal stories from women who’ve been there about what it’s like to be diagnosed and treated for “brain mets.””
The site created by patient advocates Musa Mayer and Helen Schiff while working for the Research Center for Excellence (COE) in their campaign efforts to find solutions to eradicate brain metastases of breast cancer.
The COE was a multi-institutional research consortium of scientists, physicians and advocates, under the direction of Dr. Patricia Steeg, a noted researcher in the field. Now that the grant has expired, the BRAINMETSBC.ORG website is still hosted by Pete Bevin.
Advocates Helen Schiff and Musa Mayer, who initially developed the site in 2007, still contribute information and provide updates for BRAINMETSBC.ORG but the site is no longer medically reviewed by physicians.
BrainMetsBC.org at www.brainmetsbc.org
The Triple Negative Breast Cancer
This organization focus on these breast cacncer subtypes in their website www.tnbcfoundation.org.
Their Mission is: “… to raise awareness of triple negative breast cancer and to support scientists and researchers in their effort to determine the definitive causes of triple negative breast cancer, so that effective detection, diagnosis, prevention and treatment can be pursued and achieved.”
Up to this day, they still run a group of forums where you can communicate and gather information from other patients and health professionasl- found at: http://forum.tnbcfoundation.org/
Here is a summary of their activity on October 2018:
Our users have posted 131,248 Posts in 12,627 Topics in 17 Forum(s)
Last Post, Oct 11 2018 at 10:01pm
We have 8,606 Forum Members
Here is what Breastcancer.org has to say about this triple negative breast cancer:
They refer to triple negative breast cancers as “cancers that test negative for estrogen receptors, progesterone receptors, and the HER2 protein” and “Breast cancers that are negative for the two types of hormone receptors and are also negative for the HER2 protein are called “triple negative” breast cancers”.
The African American Breast Cancer Alliance
The AABCA has been created to help and support African Americans in their journeys with breast cancer and survivorship.
A group African American diagnosed with breast cancer in the late 1980’s and early 1990’s, couldn’t find resources and support about breast cancer to address their barriers, cultural needs and treatment side effects.
Linda Finney, Brenda Anderson, Theresa Davis, Mamie Singleton, Reona Berry, Elaine Elliott, Sylvia Beamon, Bea McFadden, Carol Fitzgerald (d) and Norma Collins (d) got together and founded the African American Breast Cancer Alliance (AABCA) in October 1990.
They focus on information about breast cancer to black women.
They provide patients and survivors peer support through their educational and outreach programs. The knowledge, encouragement and understanding they provide makes a difference for African American women and families in the journey.
You can visit them at https://aabcainc.org/about-us/
Best Breast Cancer Action
BREAST CANCER ACTION
Breast Cancer Action is an independent organization that plays the role of watchdog among all organizations. There are enough charities trying to raise money for research and working on breast cancer awareness and other type of campaigns, but few taking action where it really matters.
In their experience, within the sea of profitable breast cancer charities, corporate donors and pharma industry funded research agendas, there are few organizations focusing on what really matters which is addressing the root causes of the disease
BCAction, focus on systemic interventions that will address the root causes of the disease and produce broad public health benefits.
These benefits will ensure that fewer women develop breast cancer and die from breast cancer and no community bears a disproportionate burden of diagnosis or death from this disease.
Their Mission: Breast Cancer Action’s mission is to achieve health justice for all women at risk of and living with breast cancer.
For more information Visit the site.
Financial Assistance Foundations
American Breast Cancer Foundation
The American Breast Cancer Foundation operates a national Breast Cancer Assistance Program that provides financial assistance for breast cancer screenings and diagnostic tests for uninsured and underserved individuals, regardless of age or gender.
ABCF makes these lifesaving tests available to individuals who otherwise would have no other means of access. They hope to improve the chances of eradicate breast cancer, or diagnosing the disease at an early stage, when the probability of treatments success and survivorship is higher.
More than 50 percent of ABCF callers already have symptoms of the disease.
According to their website, “ ABCF has provided more than 46,300 grants for breast cancer screenings and diagnostic services through its Breast Cancer Assistance Program. As a result of ABCF’s funding, over 1,300 grant recipients have been diagnosed with breast cancer, and were able to take the next step toward breast health.”
Their Assistance Program provides a current and reliable list of over 80 reputable nationwide resources within the breast health network.
This list of resources is given to callers when program applications are depleted, when it is deemed the caller is ineligible for the program, when the caller is in need of medical advice, or when assistance is requested that the program does not provide.
ABCF’s Breast Cancer Assistance Program will soon provide Newly Diagnosed Patient Kits to these individuals at no charge. You can find more information about their program and kits in their program page: http://www.abcf.org/programs/breast-cancer-assistance-program
Breast Cancer Charities of America
As all other breast cancer organizations, the Breast Cancer Charities of America, provide education and emotional support.
What makes them stand out are their focus on integrated cancer care, which combines spirituality with medical treatment and their financial assistance program.
The Help Now Fund is a financial assistance program available to breast cancer patients currently going through active treatment, as defined in their Help Now Fund section on their website.
In order to qualify for The Help Now Fund the applicant must correctly complete an application here on their website between the 1st and the 5th of the month.
Please beware that due to high demand of funds, The Help Now Fund is unable to assist with any bills that have already gone to collections, are currently in the process of foreclosure, filed in court for eviction, or have a past due balance exceeding $1,500.
To visit their home page here is the link: https://thebreastcancercharities.org
The Help Now Fund application page is found here: Help Now Fund
Breast Cancer Emergency Fund
This fund provides quick and compassionate financial assistance for breast cancer patients in San Francisco, San Mateo, and Santa Clara counties in California.
They believe that patients should focus on fighting the disease instead of worrying about finances.
BCEF provides emergency financial assistance to low-income individuals battling breast cancer, enabling them to keep up vital medical treatments, avoid utility shut-off, prevent eviction and maintain stable housing.
Their clients are mostly working women without access to employer-paid health insurance or disability coverage or under-insured patients. They help lighten the fiscal burden and emotional toll of unpaid bills so they can focus on what’s important: personal health and family.
BCEF support covers the following items:
Uninsured Medical Expenses. Prescriptions, over-the-counter pharmacy items, medical co-pays, insurance premium/COBRA payments, complementary care, emergency dental care, lymphedema garments, optical services, physical therapy.
Essential Utilities. Electricity/gas services, water, garbage, telephone.
Housing Expenses.* Rent, mortgage, property tax, homeowners fees.
Assistance with Funeral Expenses. No one fights this terrible disease alone. BCEF stands by our clients no matter what the outcome of their battle.
*Why does housing matter? Because it’s hard to keep a medical appointment, stay safe, dry and warm without a roof over your head. Stable housing helps people concentrate on recovery. Only BCEF delivers immediate financial assistance for housing expenses for people battling breast cancer.
Their caring staff determines, and delivers, a personalized assistance program that addresses each client’s unique needs and circumstances.
They are able to provide these services due to their extensive network of service providers partners and resources available. They are very efficient and work quickly; assistance is usually available within five days (often within 48 hours!).
Their website: http://bcef.org/
Breast Cancer Resource Center Texas
The center was created 20 years ago by two patients, Ann and Sherry, living in Central Texas. They joined forces with two nurses and a social worker to found the Breast Cancer Resource Center.
They understand breast cancer.
They know it is an expensive and demanding disease.
With that in mind, they made sure that all of their assistance programs are available to clients regardless of employment status, ethnicity, sex, age or income, so long as funds are available.
They focus on helping reduce the stress and pressure that comes with the disease.
Patients such you, don’t have to choose between paying the light bill and picking up your prescription. They help you along as they understand the cost of getting cancer.
BCRC arranges free screening and diagnostic mammograms, ultrasounds, and biopsies for uninsured or underinsured women living in Travis, Williamson, Hays, Bastrop, or Caldwell counties.
For many women, decisions about choosing the right doctor and determining the best course of treatment can frequently compete with decisions about paying the light bill and picking up another prescription.
BCRC can help provide funding for basic financial needs such as rent, utilities, and prescription drugs. This type of funding tends to fluctuate, but if they can help, they surely will.
And if in case they can’t help you, they reach out to other organizations that may be able to. They built a network of local and national resources that can step up and meet your specific financial need.
Their website address is: https://bcrc.org/
Cancer Black Care
An organization that addresses the cultural and emotional needs of black people affected by cancer, as well as their families, friends and caregivers.
They have a list of core services on their website that you can find here: http://www.cancerblackcare.org.uk/core-services
They hold monthly support meetings and Coffee mornings every last Monday of the month on their main location in London. Visit their activities page here : Cancer Black Care Activities
Critters For Cure
Was created by Ali Stark and Clancy Kress, best friends.
Their beautiful story started when Ali was teaching Kindergarten school and Clancy trusted her son’s Jason future to Ali. That was the start of a lifelong friendship that unfortunately ended in 2009 when Ali Stark lost her battle with breast cancer on Monday, September 7, 2009.
Clancy created CFTC when Ali’s cancer progressed from stage 1 to stage iv.
She tries to raise funds and provide assistance to other patients.
To apply for assistance, you have to be currently in treatment for breast and/or gynecological cancer, in need of financial assistance and live in Maryland, Virginia or Washington, D.C..
Funds are provided for a variety of expenses, such as (but not limited to): acupuncture, biofeedback, massage & mind-body therapy, scarves, wigs, and anti-nausea medications, as well as transportation to treatment, daycare, medical co-payments, rent assistance, utilities, and even dog walkers. CFTC does not pay medical bills.
Active treatment does not include long-term hormonal therapies (including Tamoxifen, Fareston, Arimidex, Aromasin, Femara, Zoladex, Lupron, Megace, Halotestin).
My Hope Chest
My hope chest focus on one thing only: Provide treatment for Uninsured Survivors! They try to provide the financial help to survivors unable to afford the expensive series of reconstructive surgeries in their hopes to rebuild a normal life.
They raise funds for the now.
As the founder says: “there are enough efforts and organizations seeking a cure for the disease. But at this time, My Hope Chest is the only organization focusing on the treatment of UNINSURED SURVIVORS”
Its goal is to enable these women to return to a normal life with feelings of hope, self-worth and completeness.
Right Action For Women
Founded by actress and breast cancer survivor Christina Applegate, RAW Offers a financial assistance program, administered by Patient Services, Inc. (PSI), to help young women who are at high risk for breast cancer gain access to Magnetic Resonance Imaging (MRI) screening.
The program offers financial support to women who are facing the risk of early breast cancer as a result of a genetic predisposition.
Assistance is only for those that are undiagnosed or no longer have breast cancer and have been prescribed an MRI based upon a family or personal history of breast cancer, those who have tested positive for a BRCA gene mutation, are genetically susceptibility to malignant neoplasm of breast, or those who were treated with therapeutic radiation for cancer prior to age 30.
You are eligible to apply for assistance regardless of insurance status.
Patient Portal: https://psictsweb.patientservicesinc.org/patientportal/
Patient Services website: https://www.patientservicesinc.org/Patients/Supported-Illnesses
A national African American breast cancer survivorship organization that addresses the breast health needs of African American women through its affiliate chapters and partnerships with existing service providers.
For 2018, they will provide US$ 100,000 in financial assistance to breast cancer survivors through their breast cancer assistance program (B-CAP).
The program is designed to provide assistance to women facing financial challenges after diagnosis. They help finance mammograms, copays, office visits, prescriptions, and medical-related lodging and transportation.
An application form to apply for assistance may be obtained by calling or sending in a request via e-mail.
The Pink Fund is a non-profit breast cancer organization that provides 90-day non-medical cost-of-living expenses to breast cancer patients in active treatment for breast cancer, so they can focus on healing, raising their families, and returning to the workplace.
In their website they talk about financial toxicity.
What they refer to are the emotional, mental and physically debilitating financial side effects a breast cancer diagnosis has on patients and their families.
While in active treatment, many patients are unable to work and experience a loss of income that can result in catastrophic financial losses and the need to rebuild financial health.
The Pink Fund will make a direct bill payment for the maintenance of health insurance premiums and non-medical bills such as, a house or rent payment, a car or vehicle lease payment, utility payments, car insurance payments, and/or license plate tabs.
The Pink Fund provides financial support to help meet basic needs, decrease stress levels and allow breast cancer patients to focus on healing while improving survivorship outcomes.
“While fighting for their lives, women and men in treatment for breast cancer often lose their livelihoods.”
– Molly MacDonald, Founder
Here are the website links
Financial toxicity information: https://www.pinkfund.org/about/what-is-financial-toxicity/
To Celebrate Life
To Celebrate Life for Breast Cancer raises money to give away to San Francisco Bay Area nonprofits.
They do so with the help with the generous support of our sponsors, partners and volunteers, To Celebrate Life, implements the Foundation’s vision that no one in the nine-county San Francisco Bay Area should face breast cancer alone.
They have been helping people struggling with breast cancer since 1996.
In 2018 they granted US$325,000 to 24 Bay area organizations that extend help to people fighting the disease.
In total, To Celebrate Life has granted over $4.83 million to fund emergency, direct services and financial assistance for breast cancer patients. Read about it here
United Breast Cancer Foundation
The UBCF helps a woman or man in need of a breast screening to have a free or low cost breast screening regardless of age, income, gender, race, ethnicity or health insurance coverage.
The UBCF funds a variety of breast screening technologies, from mammography and ultrasound to breast thermography and MRI.
- Open to women and men.
- UBCF covers 1 screening per 12 months per applicant.
- Applicants may receive a screening of their choice from a provider of their choice.
- UBCF assists with base-line thermography, however, the 2nd screening of a baseline is covered at a lesser amount.
- UBCF will not pay for screenings that have taken place prior to an application being submitted, approved and a Breast Screening Grant Award provided to the applicant.
- UBCF pays providers directly OR reimburses the applicant for the cost of the screening (payment is no greater than the Breast Screening Grant Award).
- 60-day approval period – Once awarded a Breast Screening Grant, the applicant has sixty (60) days from the date of the Grant Award to have their breast screening completed AND to submit the original invoice/receipt to UBCF for payment/reimbursement. If UBCF receives the invoice/receipt after the 60-day approval period, the Grant Award will expire.
Currently, the Individual Grant Program provides financial support for the following types of expenses:
- Medical procedures, reconstructive surgery, prescription medications, COBRA insurance coverage, housing expenses, utilities, prosthetic devices, therapeutic treatments, transportation expenses, vehicle insurance, healthy and nutritious foods, housekeeping services and holiday gifts.
Clients who apply for Holistic Care can expect to receive assistance with some of the following services: diet and nutritional counseling and supplements, counseling, mind-body therapies, energy healing, reflexology, lymphatic massage and acupuncture.
Services are tailored to individual needs and are conducted alongside conventional treatments.
To apply and learn more visit them at http://ubcf.org/
This nationally recognized, independent non-profit organization founded in 2003, focus on providing financial assistance to underinsured patients suffering from critical medical conditions.
HealthWell Foundation serves as a safety net for underinsured patients by providing access to life-changing medical treatments they otherwise would not be able to afford.
Their Disease Funds provide grants to adults and children facing medical hardship resulting from gaps in their insurance that cause out-of-pocket medical expenses to escalate rapidly.
HealthWell assists with the treatment-related cost-sharing obligations of these patients.
Patient Access Network Foundation
The Patient Access Network Foundation is an independent and non-profit organization dedicated to assisting those who cannot afford the out-of-pocket costs associated with treatment needs.
They help underinsured patients pay for essential medical care. To apply, patients must undergo an audit to become eligible for grants. Here is the application page:
With nationwide presence throughout all 50 states and three U.S. territories, it provides trained case managers that patients or their advocates may speak with about their care.
Support & Advisory Groups
Is an organization that was created based on the belief that no one should face cancer alone and without support.
Jonny Immerman was diagnosed with testicular cancer when he was only 26 years old. From that point on, he had to fight against cancer.
He was lucky to have a great support system from friends and families; however what he couldn’t find was someone at the same age that had dealt with the disease; someone he could share what he was going through and could understand a fellow cancer patient.
To bridge that gap, he set up Immerman Angels.
What Jonny learned along the way is that sharing experience with someone from the same age, gender and cancer type is an invaluable support in the fight against cancer.
The organization carefully matches and individually pairs a person touched by cancer (a cancer fighter or survivor) with someone who has fought and survived the same type of cancer (a Mentor Angel).
Cancer caregivers (spouses, parents, children and other family and friends of fighters) also receive 1-on-1 connections with other caregivers and survivors, allowing them to learn from those who have faced a very similar situation.
These 1-on-1 relationships inspire hope and offer the chance to ask personal questions and receive support from someone who is uniquely familiar with the experience.
The service is absolutely free and helps anyone touched by any type of cancer, at any cancer stage level, at any age, living anywhere in the world.
Their website address is https://imermanangels.org/
Mothers Supporting Daughters
With Breast Cancer
The MSDBC non profit organization was co-founded by a Mother Charmayne Dierker and her daughter Lillie Shockney in March 1995.
They provide a unique resource for mothers looking for support and guidance in helping their daughters deal with breast cancer.
They created several booklets, facilitate peer to peer support services specially for mothers who have their daughters fighting cancer. In other words, mothers who have been there.
Their website address is http://www.mothersdaughters.org/
Macmillan Cancer Support
This Uk based website provide a very personalized type of assistance.
They understand that every patient’s journey is unique, therefore, there is no One Size Fits All type of solution when it comes to dealing with Breast Cancer.
They take time to understand and learn about every patient unique characteristics to be able to provide the best possible support, tools and inspiration Your unique case requires.
They have a solid network of health and social care professionals and formal patients, survivors and caregivers available to help people affected by cancer and their families.
And ges without saying: their online community is worth visiting if you have questions or need someone to talk to.
It is worth taking time and visiting their site: https://www.macmillan.org.uk/
Rethink Breast Cancer
Rethink Breast Cancer is a very innovative and open mind organization that focus on Young Women Breast Cancer.
They strive to dispel the myth that breast cancer is strictly an “old lady disease,” while taking some of the fear out of the conversation to bring breast health awareness to the forefront. They address the sad reality of breast cancer affecting ever younger women.
Those who have been diagnosed with breast cancer face a series of challenges from the moment they are diagnoses. Patients often experience isolation, fear exposure, have trouble in their personal and emotional life as dating, sexuality, fertility, childcare, finances, employment become difficult to deal with.
Rethink offers age-appropriate support and resources for young women with breast cancer to make their journey a little bit easier.
They also have help patients with treatments and care issues. To learn more, visit their page How We Rethink
Cancer & Careers
Cancer and Careers is a program of the CEW Foundation, the charitable arm of Cosmetic Executive Women, Inc., a New York-based nonprofit organization of executives in the beauty, cosmetics, fragrance and related industries.
Cancer and Careers’ mission is to empower and educate people with cancer to thrive in their workplace by providing expert advice, interactive tools and educational events.
As the number of cancer diagnosis increase every year in the U.S., the number of survivors increases substantially.
What doesn’t increase are the number of organizations and resources to support survivors to get back to “ Normal Life” after getting a diagnose and fighting the disease. What is very significant is the fact that nearly 50% of all survivors are of working age and the majority will face unemployment.
There are more than enough cancer discrimination claims being filed due to unequal employment opportunity exposing even further the extra problems and issues cancer patients and survivors face.
Survivors not feeling well enough to come back to work environments, do so due to financial reasons. A considerable number admits they try to hide and keep things “ as close to Normal As Possible” to be able to resume their lives.
That’s where Cancer & Careers comes in and provide support. They focus on empowerment and education to help survivors Thrive in the workplace once again. They run programs specifically designed for survivors, online, in print and in person.
To learn more please visit their site: https://www.cancerandcareers.org/en/about-us/our-impact
Cancer Connect is an online platform that curates, organizes and share cost free, content from around the web.
They work with specialists and health providers in the selection and distribution process of news for different types of cancers. They make sure information is current, credible and relevant.
Is an News/ information / social community site focusing on education and inspiration.
Their motto is: You are not alone
The CancerConnect Online Community is a fully moderated, peer-to-peer support group for cancer patients and caregivers. CancerConnect offers patients and caregivers a thriving community to learn, share information, and support each other.
On the top menu, there is a carousel style menu, and by clicking on these arrows you will find breast cancer. Alternatively, you can also look for the logo menu on the left side of their site and type breast cancer on the search options just above “login”.
Their website: https://mavendoctors.io/cancerconnect/survivorship/
CaringBridge is a 501(c)(3) non-profit web service that connects family and friends during a critical illness, treatment or recovery.
Patients and survivors can create a free website to share information with relatives and friends completely free. It is easy to use and the interface is very friendly. It is very private and allow you to select the people you wish to share information with.
CaringBridge’s website is personal, private and available 24/7.
It helps ease the burden of keeping family and friends informed. It plays an important role during times of distress allowing patients and caregivers to draw strength from loved ones’ messages of support.
Here is the link to their explainer video and info section: How It Works
Male Breast Cancer
Since 2014, the Male Breast Cancer Coalition has provided an online space for men with breast cancer to share their stories and read the stories of others. The site includes a list of resources about male breast cancer. MBCC’s mission is to ensure no man feels alone when he hears the words “You have breast cancer.”
Metastatic Breast Cancer Network
MBCN is a national, independent, non-profit, all volunteer, patient-led advocacy organization dedicated to the unique concerns of the women and men living with metastatic breast cancer, also known as Stage IV or advanced breast cancer.
It was founded by 2 pateints Jane Soyer and Nina Schulman, they were diagnosed with advanced breast cancer and felt isolated from support groups as they weren’t Survivors.
To help and support patients living with the incurable disease and focused on Stage IV breast cancer.
They understand the challenges and shortcomings relating to stage IV. This type of cancer is responsible for every breast cancer death, there is lack of support both financial and uncertainties regarding the span of the disease.
It can be very fast in some cases and last years in others.
These facts alone could very well justify their commitment, however what really what triggered further efforts is the lack of funding towards stage IV cancer. Only 7% of all funds invested in breast cancer research are allocated towards Metastatic Cancer.
They use funds raised towards metastatic research.
Furthermore, they help patients find a cancer trial that fits their needs and provide education.
For more educational materials and information, here is their homepage: http://mbcn.org/
OncoLink is a pioneer on breast cancer education and information online.
They were the very first cancer information website built and dedicated towards cancer. Since 1994 they have been helping patients and survivors find all type of important information about different types of cancer such as research, treatments and developments.
The site is supervised and maintained by a Oncologists who understand the disease and patients needs. Their OncoLife survivorship care plan is very interesting and worth exploring.
It is one of the most complete and detailed sites on the subject.
The breast cancer section is organized by category, with 6 topics from basic information to a support/community section.
The University of Pennsylvania’s Cancer Center runs OncoLink.
Triage Cancer is a non-profit organization providing education on practical and legal matters that may impact individuals diagnosed with cancer.
They work to address cancer-related health disparities through the delivery of cancer survivorship education and collaborative advocacy efforts
Through experience and thousands of cases, they understand that the concerns of an individual may change over time. When newly diagnosed, concerns might be focused on treatment options and health insurance coverage. During treatment, issues related to managing treatment side effects, nutrition, and employment may arise.
After completing treatment, concerns may shift towards survivorship care planning, relationship issues, and managing finances.
Visit Triage Cancer website for more legal information
To learn more about here is their about page link
Belong Cancer Together
Belong is a social network for cancer patients and caregivers.
They build a platform and mobile app to help patients and families to fight cancer efficiently.
They give access to oncologists, radiologists and other helth care professionals that help answer questions.
There is much more one can do, including organize and manage documents, access to clinical trials matching service, assistance and support from a network of patients and survivors.
To find out more about the network, here is the link: https://belong.life/
Cancer Network, is member of the a large medical news network. Their high quality information sets them as an Authoritative source.
They provide updates on the treatment for different types of cancer. Their breast cancer section focus on topics for clinicians, including news on guidelines, mammography and screening, and comprehensive reviews on the management of triple-negative disease, and ER-, PR-, and HER2-positive disease.
Here is the link to their Breast Cancer page
Breast Cancer News
Breast Cancer news is one of the most detailed online publications covering the disease.
They recognize the impact Breast Cancer around the world. Newly diagnosed patients, their families and friends are in constant search for news, developments and breakthrough research in hope to find a solution to their loved ones.
Breast Cancer is one the most high-profile diseases in the world today.
As Breast Cancer News is often neglected by other leading publications, They filled the void.
They produced content in a friendly format. They “translate” technical reports and very in depth research material into easy to digest content that people will understand.
They have a large and very professional team of writers and publishers, from journalists to PHD scientists capable of making complex matters accessible to readers.
Official Website: breastcancer-news.com
Breast Cancer Research is an international, peer-reviewed online journal that publishes in depth research, articles, editorials and reports about breast cancer.
They are considered the leading journal in the breast cancer field.
What sets them apart, are the types of material they publish. Their research and reviews are outstanding in quality, exceptionally interest as they cover all areas of biology and medicine relevant to breast cancer.
They place a special emphasis on the genetic, biochemical and cellular basis of breast cancer
Here is their homepage: https://breast-cancer-research.biomedcentral.com/
Medical News Today
Is a very large Medical News website that publishes very uptodate articles on breast cancer.
They curate articles from the most prestigious universities and medical journals around the world and publish them in their breast cancer section.
Breast Cancer News is a daily digital publication.
They source and publish current scientific and research news related to breast cancer diagnosis and treatments. They publish the information in a very easy to understand format geared towards patients and families.
Their team of writers and editors are a mixture of journalists and scientists who are able to craft concise, accessible news content on a daily basis that in turn can keep the breast cancer community up to date on the latest scientific breakthroughs.
Their address is: https://breastcancer-news.com/breast-cancer-news/
WebMD is one of the most popular and visited health websites on the web. They blend news and education coming from their own full time professional staff.
Without a doubt, they are one of the best sources for original and timely health information as well as material curated from reliable and well known content providers. They are true content experts
What make WebMD stand out is the fact that their team of full time professionals provides high quality, credible information, supportive communities, and in-depth reference material about health subjects’ among them Breast Cancer.
The quality is second to none and their breast cancer section is extensive.They Offer News, Slideshows, Q&A, Message Boards and much more.
Official Breast Cancer Page: www.webmd.com/breast-cancer/default.htm
Know Your Lemons
The Worldwide Breast Cancer a.k.a. Know Your Lemons focus on education.
They create content to help people recognize and report symptoms as early as possible, so more lives can be saved, until there is a cure.
it’s mission is to educate the world about breast cancer signs, symptoms, screening and other life saving information—by making the message visually engaging and appealing to a diverse audience.
The founder, Carrine Elswarth Beaumont P.H.D, recognized a critical shortcoming in regards to the way we talk about breast cancer. We have all been conditioned to recognize Pink Ribbons and general messages such as “look for changes” but we are taught how to do it exactly.
Worldwide, only 4% of all women know how to recognize breast cancer… 4%!
There is a lot of stigma and taboo when it comes to talking about diseases openly, principally cancer. Add the breast to the equation, and we have a double taboo and hit a block in many cultures and countries.
Know Your Lemons created very high quality and creative material to address the problems in a very nice way.
Here is the link to their homepage: https://worldwidebreastcancer.org/
Dr. Susan Love Research Foundation (DSLRF)
The DSLRF Foundation created a series of educational videos designed to answer questions that patients frequently ask related to the biology of breast cancers, the body’s defense systems, and the pros and cons of treatment options.
ImPatient Science is a series of educational videos translating complex concepts into digestible information
They received support from various donors and sponsors to produce the series.
There are six programs inside the series. They cover the Basics from breast cancer, Breast cancer Sub- Types, Metastatic Breast Cancer, Understanding immunology, Clinical Research and Collateral Damage.
The objective of this very nice series of videos is to translate complex concepts into digestible information with the newly diagnosed patients and people interested in the topic to understand the human breast, the causes of breast cancer, and how we can prevent it.
Official Website: www.drsusanloveresearch.org/impatient-science
Breast Cancer School For Patients
This website offers a wide variety of courses on Breast Cancer.
The series was produced by Dr. John P. Williams from the Breast Cancer Course for Patients , found at www.breastcancercourse.org.
A veteran breast surgeon and Medical Director from Novant health UVA breast Cancer center, he has a deep understanding on all topics related to the disease.
He operates and deals with patients daily, therefore he has 1 on 1 experience with patients.
He understands their needs, worries and fears.
What he focus on is the importance of patient education in order to improve their care and decision making process.
There are six courses available on his website covering the following topics: Basics, Advances, Surgery, Medical Oncology, Radiation Oncology and Imaging and Biopsy.
Visit the Website: www.breastcancercourse.org
Beyond The Shock
Beyond The Shock video series was created by the National Breast Cancer Foundation, with the help and support of global medical community.
Their video course was developed to help patients grasp the essential breast cancer concepts
Their videos are very interesting to watch and one of the most visually engaging series available.
The Offical Website: www.beyondtheshcok.com,
We are posted all their videos here using their embed links in way to help spread the knowledge.
The Coursera Introduction to Breast Cancer is produced by YALE UNIVERSITY!
It is a basic course, where students can about the leading cause of cancer in women worldwide – from the basic biology of the disease, to risk factors and prevention, to treatment modalities to survivorship.
They offer a different concept from other videos. They talk to leading experts, explore some of the milestone studies that have pushed this field forward, and have interactive discussions on discussion boards and social media.
It is very interactive as they offer students the possibility to let them know what topics you want to cover on tweetchats, so we they can try to create material that fits participants needs.
There is something in this course for everyone – Regardless if you’re a breast cancer survivor or the friend/family member of someone with this disease, this course will help you to better understand this disease
Very Nice Course taught by Anees B. Chagpar, MD, MSc, MPH, MA, MBA, FRCS(C), FACS, Associate Professor, Department of Surgery Director, The Breast Center — Smilow Cancer Hospital at Yale-New Haven Assistant Director — Global Oncology, Yale Comprehensive Cancer Center
Journeying Beyond Breast Cancer
Being diagnosed with cancer is a mix of surreal, scary, sad and life challenging situation. Like it would anyone, getting a breast cancer diagnosis at 34 changed Marie Ennis-O’Connor’s life.
She found a very interesting way to deal with her breast cancer diagnose. She transformed what can be a traumatic experience into a source of inspiration. Marie started her blog to help her make sense of her cancer experience.
Journeying Beyond Breast Cancer allowed Marie to turn the table and started inspiring others with her blog. She welcomes, informs and share a very beautiful message.
She’s passionately working to change other people’s lives, for the better, by curating the most helpful and informative breast cancer content from sources around the web. A highlight on her website are the weekly roundups.
The weekly roundups provide a summary on topics and what’s going on in the rest of the breast cancer community, directing people to other women’s stories.
I’m Taking Charge
While working as a medical device consultant for a breast reconstruction medical device company in 2013, Lynae Dodson – Executive director of I’m Taking Charge- interviewed 150 women with breast cancer to better understand their audience.
The interviews results were surprising yet very powerful: Far too many women had never heard about Breast Reconstruction from their surgeons. She also discovered that there were no reliable sources on the internet about the topic.
In 2015, she founded I’m taking Charge.
As they state on their home page their mission is: To empower every woman to take back the things breast cancer stole from her: her sense of choice over her body, her comfort in her own skin, and her ownership of her post-cancer body.
You will find very interesting, moving and inspiring stories in her blog, next to educational articles, videos, interviews and resources.
Breast Surgeon With Breast Cancer
Life is full of unexpected situations.
Liz O’Riordan is a Consultant Breast Surgeon.
Ironically, in July 2015 she was diagnosed with Stage III breast cancer at the age of 40.
Despite her knowledge and expertise, she was hit hard. She started a blog to help her come to terms with her cancer diagnosis, and formally write and talk about my experiences.
Her Journey and writing efforts make a difference. It led her to being nominated for a ‘Woman of the Year‘ award in 2016.
She had a local recurrence in May 2018 and have just finished treatment.
Liz co-authored ‘The Complete Guide to Breast Cancer: How to Feel Empowered and Take Control’ with Professor Trisha Greenhalgh. It covers everything you need to know to empower you during treatment, and is packed full of all the tips and tricks they learned along the way.
The Website: http://liz.oriordan.co.uk/
The Perks Of Having Cancer
Florence started this blog in 2011 to lift her spirits when she was beginning treatment for breast cancer. Along the way, she realized the challenges she was dealing with and what she was learning in her own journey, would be very valuable to other patients.
She had a hard time undergoing chemotherapy but didn’t let the side effects and the difficulties she was facing to bring her down. She turned her focus on POSITIVE things and shared her thoughts on her blog.
The blog grew; she started to educate and serve as inspiration source for many.
She’s now a cancer survivor, educating readers with opinion pieces, cancer news, information on cancer risk factors, and guest posts from other bloggers.
Her blog has been on the list of the best cancer blogs every year since 2013!
She deserves all the awards as her work and dedication serves as inspiration to thousands of people fighting a very similar battle.
I Have Breast Cancer Blog
The blog owner and writer Carla, from Chester County, Pennsylvania, has been dealing with cancer since April 2011.
She is a writer, photographer and BREAST CANCER SURVIVOR.
Her post are very emotional. They make us feel what she has been going though dealing with breast cancer. She shares everything she has been experiencing and feeling.
There are no words better to describe her blog than Her own words.
They say it all…
“Well…hmmm…let’s see – on April 28th, 2011 I received the news no woman wants to hear: breast cancer.
Because writing has always been a safe haven of expression, I decided part of what gets me through this will be to write about it.”
Her writing style is very engaging, making it easy to connect and understand her journey.
The Accidental Amazon
This is Kathi Kolb’s blog.
She found inspiration in ancient Greek history for her blog’s title.
The myth of the fierce female warriors who, according to legend, had only one breast and were a force to be reckoned with in ancient Greece. This narrative became reality for Kathi when she lost one breast.
She has worked for over 20 years as a physical therapist, primarily in home health care, with a specialty in oncology rehab. In 2008, she was diagnosed with ductal carcinoma and unfortunately faced first-hand the challenges and disappointments of being a cancer patient.
Kathi is very open and direct. Doesn’t hold back and expose her thoughts and fears deriving from her battle with cancer. She makes you feel her emotions and can be very inspirational for those facing the same situation.
She conceives of herself as an accidental Amazon.
Let Life Happen
Let Life Happen
Let Life Happen is one of the best blogs on Breast Cancer. The writer, Barbara Jacoby, is a very special person within the Breast Cancer community.
The blog and Barbara have received many awards in the past and will most likely receive many more in years to come. Her awards and achievements reflect her dedication and commitment to the cause. The list is impressive and reflect her abilities .
Barbara is a two-time cancer survivor who understands the challenges breast cancer patients will face.
Through her blog, Barbara shares her breast cancer experiences. She publishes very high quality content in her own unique style: direct and easy to understand.
Barbara talks about all different breast cancer related issues, from diagnosis to the latest research. Her experiences are worth reading.
What we enjoyed the most while reading her posts and articles is that she provides a unique perspective on life after diagnosis, back to work and dealing with all types of exams and tests.
This blog is an excellent resource for all those exposed to cancer
Link to Let Life Happen
Nancy Stordahl has a a lot of experience with cancer.
Her experience with breast cancer was very powerful. She has a very unique perspective on breast cancer and how it’s affected her life.
The blog allow us to enter her world and experience her emotional journey through her own diagnosis and recovery, as well as the death of her mother from breast cancer.
Her blog expose the realities of breast cancer as she reflects on the impact the disease has on the lives of those affected. She talks about how breast cancer has altered every aspect of her existence. “My life has been forever altered by this disease. For me, there is no going back.”
You’ll find it easy to relate to her emotions along with her journey.
She is a published author. She authored the book “Cancer Was Not a Gift and It Didn’t Make Me a Better Person.”
To learn more about Nancy, please visit her blog.
Chemobrain... In The Fog
Is the blog from AnneMarie Ciccarella.
She has undergone 8 rounds of chemotherapy and explain the details how the treatment affected her cognitive skills and ability to function.
Her journey is well documented in her blog.
She focuses a lot on the side effects of chemotherapy called “chemo brain,” or the brain fogginess. If you’re going through a similar journey and has doubts about the treatment, her blog may help you understand it much better.
She talks about specific issues such as how treatment can affect your memory and ability to think, a common concern among patients.
AnneMarie is very nice and really wants to help.
She discusses the pros and cons of certain medications, highlights advocates in the field of health and breast cancer, and shares snippets of her personal life. Visit the blog.
Not Just About Cancer
Laurie Kingston passed away in January 2018, but she left a kind of legacy behind.
She was a mother and writer original from Canada. She underwent treatments to remove brain tumors that developed from her initial cancer.
Her blog about metastatic breast cancer is very sincere and touching. She talked about her fears, sadness and uncertainty cancer has brought into therlife. Her writing skills helped as you can attest reading her chronicles.
She was a true advocate and very open yet strong soul.
Her vision and thoughts will live on. Visit the blog.
Her name is Susan Rahn and on social media she is known as ‘Stickit2stage4’.
She started blogging as a way to share her thoughts and to make sense of Metastatic breast Cancer; what she describes as “this crazy terminal illness crap.”
She had issues since age 15. Due to her dense breasts, she had lumps which require a check.
From there on, she was aware of the situation and started to get mammograms by age 20. She was diagnosed with Stage 4 breast cancer in 2013 at age 43
She talks about the learning curve and her discoveries. In fact, she talks about her anger in regards to fund allocation and awareness campaigns.
She talks in detail about the steep learning process Since her diagnosis, how and what it means to have metastatic breast cancer, a terminal illness.
What made her start her blog and social presence was her anger.
The reason: “Very little money raised in the name of breast cancer goes to research, let alone to Metastatic Breast Cancer. That angered me. A lot. Why are we still full steam ahead with ‘awareness’, ‘checking boobies’ but we are losing the ‘race for the cure’? That’s when I took to Twitter and started to find my voice.
The only thing she would not change about the entire ordeal:
“I’ve met and become close with some amazing women. That’s the only thing I wouldn’t change about all this.”
Caroline’s Breast Cancer Blog
Caroline started her blog when she was diagnosed with cancer in 2007. Blog was a way to cope with her cancer treatments. She has had cancer twice, along with her other health ailments.
Cancer was the main focus of her life for many years. These were painful and challenging years. Still, that hasn’t stopped her from writing frankly about her life.
Her candid articles are relatable for anyone going through a similar journey. She share her experiences and thoughts about treatment decisions, medications, or being a “normal” person. She understands first hand and provides insights as she has dealt with them. You can learn more about Caroline’s story if you Visit the blog.
Caroline has recently started a new blog, as she recently stated that Breast Cancer isn’t the main focus on her life. It was for a long period but no longer.
Breast Cancer? But Doctor... I Hate Pink!
Ann shares some very personal insights into her life with stage 4 metastatic breast cancer and how she has lived the last 3 years in remission.
In her blog. She talks about the process she went through from the suspicion of having cancer to diagnosis and treatments. Her perspective on remission is very interesting, more so when considering the fact that she has terminal cancer.
She shares what she did while seeking treatment and her efforts to connect with other people going through the same journey.
The latest posts she talks about living life without fears about the future and trying to not worry about what will happen with her cancer.
Ann doesn’t hold back and talks about everything. she addresses intense topics, such as losing friends with the same disease, to more “normal” issues such as day-to-day thoughts on products, books, and food. Visit the blog.
Beauty Through The Beast
Ciara is the colorful and very likeable person behind this blog
She is a triple negative breast cancer survivor with a sparkle for life that shares her mission to live life to the fullest!
Her life experiences, both cancer and non-cancer related are very interesting.
Until being diagnosed, Ciara was teaching Italian in the public system in New Jersey, which helped her learn to think and react fast and stay calm in times of distress. She travelled the world and spoke on public conferences.
Cancer changed her life, change direction, but didn’t take her passion for life. In her Bio, she stresses the fact that she wants to enjoy life. She wants to REALLY live, not merely pay bills.
Her blog stands out as the message is very encouraging. She dealt with severe blows with grace and positivity. Really remarkable!
She is an activist survivor, speaker and consultant.
Some Girls Prefer Carnations
Some stories are more touching and emotional than others. Well, Heather’s story is way up there when it comes to intensity.
She was diagnosed with cancer at age 29. Went through very extreme treatment that lead to a double mastectomy in 2014.
By all accounts, the story of this young women is nothing but extraordinarily courageous. She is a wife, mom of two daughters and a full time respected and awarded microbiologist.
She won the Herbert. L. Rothbart Early Career Scientist Award for agricultural research service.
Heather talks about her treatment extensively. She explains the positive and negative aspects.She leaves no room for guesses. Everything is there…And she does it with grace!
Joan Lunden is an accomplished Journalist, author and television host.
She was the co-host of ABC’s popular Good Morning America for 17 years, from 1980 to 1997. You may have heard about her battle with breast cancer on national television. Now, she’s using her influence and voice as a platform to inspire people with breast cancer and their loved ones.
Her website is huge. Not only does her site cover topics you may not think immediately about, such as parenting tips and social anxiety, but goes explores reports on the latest medical studies and clinical trials
Visit Joan’s site: www.joanlunden.com
Debs Breast Cancer Journey
Deb’s Breast Cancer Journey
Deb was diagnosed with breast cancer.
The cancer became congestive heart failure and recently, metastasized breast cancer.
Most people would be trying to make sense of such suffering and not able to find a single reason to be positive about life…Yet, Deb is able to talk about the topic in very direct and surprising positive way.
She talks about the good, the bad, the very ugly with simplicity and incredible understanding. It is really amazing how people find the strength to share joy while facing hardship.
Deb is very positive. You can read about her very challenging journey on her blog.
Who’s behind this blog?
Nicole McLean, known to friends and family as Nic… is a smiley-faced breast cancer survivor, writer, health advocate and entrepreneur.
All at the same time.
My Fabulous Boobies is a blog that began while Nic was diagnosed with stage 3 breast cancer in the summer of 2008.
She was under 40 when diagnosed, therefore categorized as young adult survivor of breast cancer. Young women diagnosed with breast cancer have different needs and life concerns than the average woman diagnosed in their 50’s or later.
In her blog, she addresses topics relevant to younger patients: fertility, dating/romance with or after cancer, body image issues, career concerns and long-term financial impact and more.
Not many women in my cancer center looked like me… so I looked online
She wants to address the issues from a different and unique perspective: from a Young, African-American, childless, never married patient. she felt pretty lonely dealing with the new challenge and couldn’t find many women that she felt comfortable enough to share her fears and concerns with.
Nicole was sure that the other women in the cancer center could understand her ordeal and concerns in regards to medications or treatment procedures. But she didn’t know who could she talk to about hair issues? Or dating and sex?
She resorted to friends but since they weren’t experienced from a breast cancer patient perspective, it wasn’t easy. To fill the void, she started writing about it on her blog. I
Nicole became the voice she wanted to find.
Detrice is a young British mother who was diagnosed with Ductal Carcinoma In Situ breast cancer, in 2014, at age 32.
Her blog aims to bring positivity and helpful information into dealing with breast cancer as a young woman and mother.
She doesn’t focus so much on facts and figures. She doesn’t go over side effects and outcomes in details, as there are enough resources available from health professionals and other bloggers.
She wanted to focus on real life experience. Just one young woman hoping to get over the fence and survive. As she says, get through to the other side.
Her last post dates, September 2017.
For many people it may seem outdated, due to our continuous search for new information. Yet, in most cases, the personal struggles and challenges, don’t change much.
The Sarcastic Boob
The Sarcastic Boob, is the blog from the late Scorchy Barrington.
Scorchy died of metastatic breast cancer on November 14, 2017.
During her long fight, she managed to elude death on several occasions. That ability to cheat death on so many occasions was remarkable, but deep inside Scorchy knew that her fate was sealed.
It was very clear in her mind that she wouldn’t last forever and one day it her life would come to an end.
Whenever she was lucid and able to think straight, she made plans for the end of her life; among those plans, was drafting blog posts to share her experiences and help others in the future.
She stopped publishing a couple of years before her death, but left a life long impression for those who were exposed to her views and opinions.
For members of the breast cancer community, Scorchy’s blog was a must-read – intelligent, irreverent, and hard-hitting. Those who had the pleasure of meeting her, they discovered a lovely person with a wicked sense of humor.
She is often described as always engaging and entertaining.
She loved her cat, her work, and her knitting.
The most recent post was published by her “blog sister” kathi to celebrate Scorchy’s birthday, on February 14, Valentine’s day.
The post was drafted by Scorchy while she was alive. She requested kathi to publish it on her behalf.
Her blog is a must read for breast cancer patients.
Life Has Its Ups & Downs
- The Life Has Its Ups and Downs Blog is published by Joanna.
- Joanna is a very active and lively woman who love’s tennis. Tennis in many ways became her best companion on her fight against breast cancer. She plays almost everyday and tennis became an integral part of her “treatment”.
- In 2008, she was diagnosed with advanced Inflammatory Breast Cancer. She played tennis throughout her chemotherapy and radiation treatments and took off seven weeks to recover from surgery.
- It’s an amazing accomplishment.
- Right or wrong, she believes that she would not be alive today if not for her tennis playing and of course her excellent medical care all along the way.
- Joanna’s blog has detailed information about several aspects of her treatment that can be of great value for other patients.
- Here is the link to her blog Life Has Its Ups & Downs
A Dancer Living With Cancer
Dorrie Milan is a wife, mother of grown children, a dancer and business owner, an arts advocate, and…
A cancer survivor.
During the period she was publishing on her blog , she was battling breast cancer for the 2nd time.
The Dancer Living With Cancer blog began as a story of survivorship and observances beyond cancer when she was first diagnosed with cancer. When she received the news of her second diagnose, she found myself on the battlegrounds again, on March 7, 2012.
Her intention with the blog was not to share her sorrows, but to share the lessons cancer was teaching her. “My intention is not to whine about becoming a victim of this disease, but to share my journey.”
Dorrie described cancer as a very tough teacher, but showed her resilience and commitment with her will to learn the lessons that it teaches.
She is a dancer living with cancer.
her cancer saga started when she was diagnosed with breast cancer at 38 with Stage 3 Invasive Ductal Carcinoma.
Brock was able to find humor and use it in her journey against cancer. She has a very sharp and twisted sense of humor and used it to keep herself positive and smiling during her cancer journey.
She named her blog TATA WARS.
As a child born in the 70s, Star Wars is awesome! Hence the inspiration for the blog name, TaTa Wars. I had never really blogged before, so cancer definitely inspired me to do something new!
I am happily married and have 2 amazing children. When I found out at 38 I had Invasive Ductal Carcinoma (IDC), my kids were only 13 and 6. Going through Stage 3 cancer was brutal… chemo, radiation, lumpectomy, and now a life-long hormone therapy treatment and side effects.
Even after the main cancer treatments, I was still fighting… Lymphedema, Fibromyalgia, Neuropathy, & Arthritis. Each of these side effects occurred from various cancer treatments. Cancer does not necessarily end after it is “removed” or “remission” or “NED”… it can continue to affect your life in many ways.
It has been a journey, and I am so grateful to all my family and friends for their support and love.
I started the blog in 2013 as a way to not only to remember everything going on during my cancer treatment, but as a way to help others. For me, reading other stories from people going through cancer gave me hope and ideas on how to prevent, treat, and deal with side effects (hopefully). I only hope that my blog can do the same for you
Special Patient Needs
Founded in 2012 in Bethesda, MD, Lolly’s Locks is a 501(c)(3) nonprofit organization dedicated to providing high-quality wigs to cancer patients suffering hair loss as a side-effect of chemotherapy.
Look Good…Feel Better is a non-medical, national public service program to help women offset appearance-related changes from cancer treatment. It offers a free program that helps improve self-image, appearance and quality-of-life in people undergoing cancer treatment.
LympheDIVAs create medically correct compression apparel for women with post-breast cancer lymphedema. The founders want to inspire women cancer survivors to feel beautiful, strong and confident.
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